Monthly Archives: August 2013

Jen generously offered to write this week’s post. Since I’m vacationing up at the Barnes – St. Peters Hospital’s ICU with pneumonia, I took her up on her offer – Well, I can’t just sit by and let Jim have … Continue reading →

As if living with Locked-In Syndrome wasn’t enough to deal with, the stroke messed up my head in another way. About a year or so after my stroke, a strange thing settled over me that lasted a month or so … Continue reading →

This doesn’t have anything to do with anything, it just occurred to me. I picked a terrible time to have a stroke. I’m almost 46 years old now, so that means I’m completely missing my mid-life crisis. It’s probably just … Continue reading →

OK, real quick – By a show of hands: How many of you knew I just joking around about discussing public urination? A lot of you, I hope. I need to watch my sarcasm, many of you might not know … Continue reading →

Because of my stroke, about 95% of my body doesn’t cooperate with my brain and do what it wants it to do. This includes my diaphragm, which plays a big part when it comes to doing stuff like taking deep … Continue reading →

Does this book exist? If so, I want it. Some of the perks of living with Locked-In Syndrome include being totally unemployable and having plenty of free time to sit around and wonder about stuff. In the last couple years, … Continue reading →

…continued HOUSEKEEPING STUFF: As happens quite often, my ‘typing’ hand goes kaput long before I finish my thoughts. I’m good for about 1-2 pages a day. That’s good, it’s way up from where it was six years ago. Back then, … Continue reading →

Living with Locked-In Syndrome is as exciting as you have probably already imagined. At first, it was hard to accept and deal with the big issues like not: walking, talking, being able to use my hands, eating normal food (more … Continue reading →