Locked-In Syndrome is a two person joyride

Nobody ever told either of us that this was gonna be easy. Boy, has it ever lived up to that. When I stroked out and slipped into LIS almost eight years ago, neither of us had a clue as to what we were in for – especially Jen. Once the initial shock of having her husband of three years come pretty close to biting it kind of wore off a little and she quickly realized that she would now be running the show pretty much by herself, she hit the ground running at full speed and she really hasn’t slowed down since.

My legs don’t work anymore so she has to do all the legwork for both of us. (rimshot. “Thank you. I’ll be here all week. Try the veal and don’t forget the wait staff.”) She has to wear many different hats throughout the week. In no particular order, she has to be: caregiver, nurse, physical therapist, amateur eyelid surgeon *, head chef, grillmaster, housekeeper, primary groundskeeper, gardener, chauffeur, personal attendant, bodyguard (when I’m behind the wheel, I can be a danger to myself and others!), breadwinner**, CFO, banker, best friend, spiritual advisor, psychiatrist, wheelchair mechanic, handyperson, tech support, entertainment director and probably a lot of other things that slip my mind right now. In other words, she goes nonstop from the time her feet hit the floor in the morning until her head hits the pillow at night – seven days a week.

To be continued…

———-

* My left eye had been acting up and really bothering me the last couple of weeks. So we went to see the eyelid doctor who was recommended to us by our cornea specialist (who was referred to us by the neuroophthalmologist). Who knew all these different types of doctors even existed? I imagined this guy back in med school on the day they made you pick a specialty: Pulmonology? Taken. Cardiology? Taken. Ooh, look! No one has eyelids yet. Cool, I’m all over it! You can barely find just a regular old general practitioner anymore that isn’t 75 years old (nothing against 75-year+ olds, Dad!). Anyway, he explained that my eyelid was a little cattywampus (my word, not his) and it caused a few eyelashes to grow sideways and touch my eye, irritating it. We had two options: 1. He could perform an in-office procedure where he would flip my eyelid inside-out and make a small incision and that would shape my eyelid correctly and make my eyelashes behave. –OR- 2. Jen could get a decent pair of tweezers, the kind with the magnifying glass built onto them (?), and just pluck them out every 4-6 weeks when they come back. Um, no-brainer? I’m sorry but any “procedure” involving a scalpel and stitches anywhere on my face is an “operation” and I’ll be having none of it. So we chose Curtain 2 and now we’re just anxiously awaiting the return of my rogue eyelashes!

‘** Jen and I both worked for NISC in 2006 when I had my stroke. Jen continued to work there AND they allowed her to do her job from home. This has been a huge blessing for both of us. I don’t want to get into it now because it’s a whole different subject for another time but suffice it to say that we are both grateful to work/have had worked there.

This entry was posted in Uncategorized. Bookmark the permalink.

6 Responses to Locked-In Syndrome is a two person joyride

  1. Sherry morgan's avatar Sherry morgan says:

    Oh Jim it’s good to see you back blogging! Yes, your Jen is special. I don’t think there’s many women with her grace and tenacity! She is a women of many facets! She can even be a stylist and shape your eyelashes! I tweeze my eyebrows and that hurts, I can’t imagine an eyelash! Yuck! Well, keep those lashes growing straight and we’ll see you next Tuesday!
    Love ya
    Sherry

  2. Kathie McCord's avatar Kathie McCord says:

    You are both such amazing people – Jen for all you do for Jim, still able to work and take care of the house, and Jim, for your fantastic sense of humor and what you give Jen. What a team! I love and admire the both of you so much!

  3. Denise Chamberlain's avatar Denise Chamberlain says:

    Jim, Really enjoyed reading your latest blog. You and Jen are such an inspiration to me. Both of you make a choice each day on how that day is going to look and what God will show you in that day. God has truly blessed both of you in bringing you together as man and wife. He also blesses me and many others in the example you give to us.
    Thanks for your thoughts and keep them coming
    Denise Chamberlain

  4. psullins's avatar psullins says:

    So glad you are blogging again – I don’t twitter, yes I am in the dark ages, still have a dumb phone too! Jen, I should schedule a beauty visit with you and give your the ultimate challenge of my chin (oops, probably too much information to share with the world) Your blogs continue to make me smile and remind me of just how blessed we are each and every moment of our day. Love you both!

  5. Jill's avatar Jill says:

    So glad to see you back here – I don’t Twitter either so I feel like I miss out. 😦 I have heard of so many people (me included) this past week with eye problems! Mine was an infected cornea – all cleared up now. I think Jen is simply amazing with all she does!

  6. Rick Holschen's avatar Rick Holschen says:

    As always a great read Jim 😉

Leave a reply to Kathie McCord Cancel reply